The Fragile X Society is asking for your help on Wednesday 16th March. It wants to raise the Welsh Assembly Government's awareness of Fragile X, and is inviting interested individuals and families to attend.
Wednesday 16th March 2016
National Assembly for Wales
11.30am-1.30pm
This is being organised by Eluned Parrott AM and colleagues, together with the Fragile X Society. The purpose of the day is two-fold: to share information about living with Fragile X, and to influence the Welsh Government's policy-makers.
For more information about this exciting event (which is free, with a light lunch provided), go to Spreading the word about Fragile X
The Fragile X Society has been running for 25 years. In that time it has given direct support to over 4,200 families and supplied information to countless others. The Society runs annual conferences in Birmingham and Stirling, and maintains an impressive website - a real goldmine which we recommend visiting regularly: www.fragilex.org.uk