Building advocacy networks for people

so that they have a good life even after their parents are no longer here to stand up for them

Building advocacy networks for people

so that their families have peace of mind about the future

Building advocacy networks for people

so that they are empowered to realise their aspirations and contribute to their community

Building advocacy networks for people

so that they form intentional friendships that broaden and enrich their lives

Building advocacy networks for people

so that they develop stronger links in the wider community

Building advocacy networks for people

so that they are as fulfilled and happy as they can be

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3,278 Miles by Bike

14 Jun 2021

We were delighted to read an inspiring lockdown story on the Fragile X website: Theo, a young man who has Fragile X, has cycled over 3,000 miles and become super-fit in the process.

This is what his mother, Petra, said just over a month ago: "It is exactly a year since Theo had his first ride of lockdown. Since then, with dad as escort, [he ...] has cycled the lanes of North Yorkshire and County Durham and is now as fit as a butchers dog! He’s worn out one bike and three bells, and he’s covered an amazing 3,278 miles. He’s worked out where tearooms, sweetshops, pie shops and fish and chip vans are located so he’s always able to refuel, and he’s delighted that his new onboard computer tells him the temperature at any given moment. He enjoyed last year’s warm spring which left him with a tan deeper than a Spanish holiday but he probably liked the wet winter better as there were loads of flooded roads which he tackled with a ‘yee-hah’ as the bow wave broke over his overshoes. Never mind. And, in his own quiet way, he’s really pleased when people ask him about his mileage and he’s really proud of what he has achieved.”

Well done Theo!